Although still a terminal disease, some states (such as South Carolina), do not consider Cystic Fibrosis (CF) a disability. Therefore, many state subsidized programs are not available to CF patients unless, and until, they are hospitalized. Families caring for CF patients are faced with huge financial burdens to keep their loved ones healthy. It is not uncommon for costs to exceed $25,000 per month for medications and treatments for healthy CF patients. Quite often college funds are not possible.
To raise awareness that Cystic Fibrosis (CF) is a disability and to provide scholarships to underprivileged CF patients.